About Me
- RegentLynx
- This blog is a personal space where I can post some of my photos and talk about some of my favorite things. I have many interests, including, but not limited to: The Western Mystery Tradition, Rosicrucianism, Gnosticism, Modern Chinese Medicine, Photography, Music, Chess, Computers, ad infinitum..... I love to read, hate television, but do enjoy good movies. Newest entries are always posted on the top of page.
Wednesday, October 29, 2008
Blessed and Grateful
Well, to quickly bring things up to date I did finish the entire course of combo therapy and gratefully had full response as within two months my viral load was cleared and remained so throughout the remainder of the therapy. This past Monday, two days ago, I received the blessed news that my viral load was still clear after submitting the six months post interferon blood sample :-) (actually at the time I had my blood drawn it had been 7 months since I finished the interferon therapy).I can't begin to convey just how blessed I feel, to finally be free of the "flu like" symptoms I've had off and on all these years. Oh yes, thankfully enough my liver enzymes are now completely within normal limits on the lab test, this after being chronically elevated for years.
During the course of therapy it was a real struggle at times. Many times I really had to lean on my loving and patient wife for support in order to keep going, not to mention she was my memory many times, during the six month protocol she made sure I did not miss a single dose. The main side effects I experienced were body aches, lethargy, malaise, depression, "brain fog" and mainly just a loss of vitality. I didn't care whether I even bathed at times much less whether or not I continued this blog. The entire experience was very humbling since besides the love and encouragement I received from my wife, my friends at work went above and beyond the call of friendship as they all pitched in and worked extra hard to make up for the loss of a pair of working hands, I know that was especially trying at times especially when things get busy as they always do in a medical clinic. I was also incredibly blessed as my immediate supervisors at work covered for me and made sure my job was there and waiting for me once I was physically able to return to work. Everyone's love and patience was greatly appreciated and I am eternally grateful!
The main message I wish to convey is that I now feel it is wise and worth it to undergo the interferon/ribavirin therapy if your doctor recommends it. As those who read this blog from the beginning are aware this was not my attitude when I initially discovered I was positive for Hep C. I was a very strong advocate, not only here but on several Hep C online Message Boards for the alternative medicine route, Chinese Herbal medicine etc. Though I still believe it is probable that using those options slowed down the diseases progression and did provide some relief and allowed me to work for several years despite the infection I now know that conventional medicine was the only thing, at least in my case, which provided complete relief. I won't paint a completely rosy picture and tell anyone that interferon therapy is easy, no, to the contrary, it is a very difficult thing to undergo and does require commitment, resolve, support etc. I can honestly say now though, that I am very glad it was the decision I finally made, it was definitely worth it. Of course everyone is different so make sure you find a doctor you can trust and then please follow his advice and work with him. And don't give up hope, though it's hard at times try to stay positive which has definite beneficial effects.
To all those out there still battling, don't give up and stay positive. I know I try and send thoughts of encouragement and healing Rays of Light every day to all those I know that are fighting the battle. I know I'm not the only one, who keeps you in thought and prayer, so continue to fight the good fight and may you experience the healing power of Light and Love--So mote it be. Amen
Friday, October 12, 2007
1 Down 23 To Go
Well now that I'm feeling somewhat human again it's time here in another hour or so to give myself another weekly injection, getting ready for round two of this 24 round fight (thankfully my genotype, 3a only requires 24 weeks of treatment).
It turns out that I really could not have put this off any longer. I had reported in an earlier blog entry that my biopsy came back Grade 1. This was true but what my somewhat incommunicative Dr. didn't elaborate on was filled in by the nurse. As she explained and I've since confirmed by my own research is that Grade only refers to the amount of inflammation in the liver what is more important is Staging. Biopsies are staged in a 5 step point system, 0 to 4, 0 being a perfectly healthy liver and 4 being a liver suffering from cirrhosis with different Stages (1 to 3) of Fibrosis in between the two extremes. It turns out my biopsy came back Stage 3-4 which means its very fibrotic but not quite cirrhotic, but needless to say, it definitely has reached the stage where I would not want to put off conventional Combo Therapy (Interferon/Ribavirin) any longer. So I'm very glad we've got the ball rolling and with the support of my Lovely Lady I'm very determined to get through this, determined to keep my head up.
Wednesday, September 05, 2007
I Guess I'm Not Crazy.....
My liver biopsy was performed quite well yesterday, virtually painless, unlike my last one four years ago which was a bit painful. Very pleased with that, now just waiting for the report from the pathologist in hopes that any liver damage caused by the virus continues to be minimal.
Saturday, August 25, 2007
Good News and Some Frustration
The frustration stems from being notified by my current Gastroenterologist that he won't put me on treatment until I am evaluated by a Psychiatrist for clinical depression, Clinical Depression is one of the main contraindicators for current Hepatis C Combination Therapy. This is due to the fact that when I discontinued my very short trial of interferon treatment around six years ago I mentioned the D word ("depression") as one of the reasons I wished to discontinue treatment at that time. Yes, I was a little down about not being able to work etc. and so decided to quit treatment and return to work, hoping to manage the virus with alternative methods (Chinese Herbal medicine etc). I know however, I don't have clinical depression and this is frustrating me because now that I have decided to undergo treatment I find myself anxious to get started. Oh well, for now it's hurry up and wait for the ultasound, biopsy results and the Psych referral.
As far as the labs which have come back already here is my current baseline;
AST is slightly elevated at 67
ALT is slightly elevated at 110
HDL Cholesterol is low at 37
And HCV Viral Count is at 5,790,000 (Genotype 3a)
Tuesday, August 21, 2007
Forget your perfect offering.
There is a crack in everything.
That's how the light gets in.
-Leonard Cohen
Friday, July 27, 2007
A New Direction
I am not sorry I gave Dr. Zhang's Chinese Medicine protocol a try, it definitely had some profound positive effects on my health and I am sure I am in better hepatic health today than I would have been otherwise. As mentioned it did allow me to enjoy an especially happy and rewarding period of my life. I have, however, now come to the point where I must admit this approach has not been enough, or at least, must now be augmented with more aggressive treatment methods. I am so certain of this that I actually approached my General Practioner this past week with a request for a referral to the Hepatologist I seen in June 2003 who at the time performed a liver biopsy (Grade 1, result) and offered me interferon treatment which, at the time, I declined for the option journaled here. At the time he said that was fine, he could agree to that and recommended a follow up biopsy in 2-3 years, time has a tendency to get away from one, and it has now been 4 years since this last biopsy. I am now awaiting the referral from my health insurance and will followup with this course of action. I am sure he will want to do a followup bisopsy and I am now determined to follow his subsequent recommendation, even if that is interferon treatment.
Like most guys, it's hard for me to admit to being afraid but I guess that's a large part of what I've been battling with. We all know courage is important and I am determined to muster the internal resolve to see this through but perhaps, the real key lies in the yogic Niyama (practices, observances) of Isvarapranidhana, which literally means in Sanskrit, "to lay all actions at the feet of God". Maybe self-surrender is the key, after all, as it is written, "For pure will, unassuaged of purpose, delivered from the lust of result, is every way perfect". After all, I know I have done everything in my personal power to combat this and now it's up to the Universal Will.
Monday, May 28, 2007
A Wider Lens
The new blog can be found at, A Wider Lens
Saturday, February 03, 2007
Great Little Essay
Sunday, October 29, 2006
Discontinuing the Chinese Medicine for now.
Thus, for now I’ve decided to discontinue the Chinese Medicine and then have my liver enzymes retested in three months to see if perhaps there is a correlation?
Having said all that, however, I can’t deny the amazing healing effects I experienced with the Chinese Medicine last October/November 2005 when I was the sickest. I felt much better within two weeks of beginning the Chinese Medicine. Maybe, the CM is better for short term healing and not so much for long term use. At any rate, I am glad I gave it a try, as I can say for certain I am much healthier now than I was a year ago.
Wednesday, October 11, 2006
Is No Treatment Better Than Treatment?
Well, it’s time to admit that treatment with Dr. Zhang’s Modern Chinese Medicine protocol has not had the hoped for results. When I say hoped for results I mean that this chronic viral infection continues to at times interefere with my life, causing me to miss work, cancel social engagements (had to miss my Grandmother’s 84th birthday party this past weeknend which was very discouraging) etc.
On the other hand I am far better off than I was at this time last year when I was the illest I had ever been due to this condition. How much did Dr. Zhang’s herbal protocol contribute to this improvement over the last year or how much was simply the result of the body’s natural ability to heal itself I cannot say?
At any rate, thinking about all of this over the last few days as I’ve once again been feeling ill has led me to the conclusion that for this particular viral illness no treatment at all may in fact be preferable to the current standard medically accepted treatment for Chronic Hep C infection. Consider the following which comes directly from the website of the Department of Health and Human Services Centers for Disease Control and Prevention;
What are the chances of persons with HCV infection developing long term infection, chronic liver disease, cirrhosis, liver cancer, or dying as a result of hepatitis C?
Of every 100 persons infected with HCV about:
- 55-85 of persons might develop long-term infection
- 70 persons might develop chronic liver disease
- 5-20 persons might develop cirrhosis over a period of 20 to 30 years
- 1-5 of persons might die from the consequences of long term infection (liver cancer or cirrhosis)
What is the treatment for chronic hepatitis C?
Combination therapy with pegylated interferon and ribavirin is the treatment of choice resulting in sustained response rates of 40%-80%. (up to 50% for patients infected with the most common genotype found in the U.S. [genotype 1] and up to 80% for patients infected with genotypes 2 or 3). Interferon monotherapy is generally reserved for patients in whom ribavirin is contraindicated. Ribavirin, when used alone, does not work. Combination therapy using interferon and ribavirin is now FDA approved for the use in children aged 3-17 years.
What are the side effects of interferon therapy?
Most persons have flu-like symptoms (fever, chills, headache, muscle and joint aches, fast heart rate) early in treatment, but these lessen with continued treatment. Later side effects may include tiredness, hair loss, low blood count, trouble with thinking, moodiness, and depression. Severe side effects are rare (seen in less than 2 out of 100 persons). These include thyroid disease, depression with suicidal thoughts, seizures, acute heart or kidney failure, eye and lung problems, hearing loss, and blood infection. Although rare, deaths have occurred due to liver failure or blood infection, mostly in persons with cirrhosis. An important side effect of interferon is worsening of liver disease with treatment, which can be severe and even fatal. Interferon dosage must be reduced in up to 40 out of 100 persons because of severity of side effects, and treatment must be stopped in up to 15 out of 100 persons. Pregnant women should not be treated with interferon.
What are the side effects of combination (ribavirin + interferon) treatment?
In addition to the side effects due to interferon described above, ribavirin can cause serious anemia (low red blood cell count) and can be a serious problem for persons with conditions that cause anemia, such as kidney failure. In these persons, combination therapy should be avoided or attempts should be made to correct the anemia. Anemia caused by ribavirin can be life-threatening for persons with certain types of heart or blood vessel disease. Ribavirin causes birth defects and pregnancy should be avoided during treatment. Patients and their healthcare providers should carefully review the product manufacturer information prior to treatment.
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To sum it all up, only 1-5 % of persons with Chronic Hepatis C infection might die from the consequences of long term infection (liver cancer or cirrhosis). Is this small percentage of risk worth the many side effects of the current medically prescribed treatment of choice, especially when the current treatment, ribavirin + interferon, is only effective for up to 50% of patients infected with the most common genotype found in the U.S. [genotype 1]!!!! Is this 50% chance worth all the risks of combination therapy? For myself, I had to answer no. After all, death is not the problem, we're all going to die. Life is the challenge and at this point I don't need the added challenge of combo therapy side effects.
For myself, medical science is going to have to give me better odds than the above. This is why, for now, I choose non-treatment over treatment. I will continue to strive to live a quality life, do what I can to better my health through practical means, good diet, meditation, exercise, positive frame of mind and perhaps more importantly in the words of Warren Zevon, “enjoy every sandwich”.
This is the day that the LORD has made. We will rejoice and be glad in it! -Psalms 118:24
Sunday, October 01, 2006
It's Been A Year
One important point to remember is that lab testing of liver enzymes does not in any way indicate the amount of liver damage, yes, it does show definite evidence of liver inflammation but the only true measure of actual liver damage is the liver biopsy. I have undergone two biopsies in the last 7 years and both of them graded only a 1, which leads me to believe that aggressive treatment with interferon is, in this case, unwarranted. I’m still not convinced that interferon therapy is the answer in most cases of Hepatitis C infection, especially since it can cause even further health problems and with barely a 50% success rate is it really worth the risk?
All I know is that I am able to enjoy today, and really, isn’t that enough?
“17. Also the Holy One came upon me, and I beheld a white swan floating in the blue.
18. Between its wings I sate, and the æaons fled away.
19. Then the swan flew and dived and soared, yet no whither we went.
20. A little crazy boy that rode with me spake unto the swan, and said:
21. Who art thou that dost float and fly and dive and soar in the inane? Behold, these many æons have passed; whence camest thou? Whither wilt thou go?
22. And laughing I chid him, saying: No whence! No whither!
23. The swan being silent, he answered: Then, if with no goal, why this eternal journey?
24. And I laid my head against the Head of the Swan, and laughed, saying: Is there not joy ineffable in this aimless winging? Is there not weariness and impatience for who would attain to some goal?
25. And the swan was ever silent. Ah! but we floated in the infinite Abyss. Joy! Joy!
White swan, bear thou ever me up between thy wings!”
---Liber LXV, Cap. II, vs. 17-25
Monday, July 31, 2006
Some Favorite Quotations
Here are the first few of some of my favorite quotations I would like to share, in no particular order:
“So live your life that the fear of death can never enter your heart. Trouble no one about his religion; respect others in their views, and demand that they respect yours. Love your life, perfect your life, beautify all things in your life. Seek to make your life long and of service to your people. Prepare a noble death song for the day when you go over the Great Divide. Always give a word or sign in a lonely place. Show respect to all people, but grovel to none. When you arise in the morning give thanks for the light, for your life and strength Give thanks for your food and for the joy of living. If you see no reason for giving thanks, the fault lies in yourself. When your time comes to die, be not like those whose hearts are filled with fear of death, so that when their time comes they weep and pray for a little more time to live their lives over again in a different way. Sing your death song, and die like a hero going home.”
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If you hate a person, you hate something in him that is part of yourself. What isn't part of ourselves doesn't disturb us.
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A loving person lives in a loving world. A hostile person lives in a hostile world: everyone you meet is your mirror.-
There is only one corner of the universe you can be certain
-Aldous Huxley
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Better to light a candle than to curse the darkness.
-Ancient Chinese Proverb
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Your work is to discover your world and then with all your heart give yourself to it.
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Yea, verily, let your Will to Love burn eagerly toward this creation in yourselves of the true Life that rolls its waves across the shoreless sea of Time! Live not your petty lives in fear of the hours! The Moon and Sun and Stars by which ye measure Time are themselves but servants of that Life which pulses in you, joyous drum-beat as you march triumphant through the Avenue of the Ages. Then, when each birth and death of yours are recognized in this perception as mere milestones on your ever-living Road, what of the foolish incidents of your mean lives? Are they not grains of sand blown by the desert wind, or pebbles that you spurn with your winged feet, or grassy hollows were you press the yielding and elastic turf and moss with lyrical dances? To him who lives in Life naught matters: his is eternal motion, energy, delight of never-failing Change: unwearied, you pass on from aeon to aeon, from star to star, the Universe your playground, its infinite variety of sport ever old and ever new. All those ideas which bred sorrow and fear are known in their truth, and thus become the seed of joy: for you are certain beyond all proof that you can never die; that, though you change, change is part of your own nature: the Great Enemy is become the Great Ally.
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There is strong shadow where there is much light.
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We find comfort among those who agree with us - growth among those who don't.
-Frank A. Clark
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I will try to share some more over the next few days. I would like to hear some of your favorite quotes as well. This could be fun, feel free to leave your favorites using the comments link below.
Tuesday, July 18, 2006
Beauty
Life Lessons

Chronic illness definitely forces one to be a bit more introspective. It’s a common aphorism, “that “everything happens for a reason”. I’ve often felt the need to attempt to understand what lessons the Holy Guardian Angel was trying to impart to me through this long battle with chronic illness? I’m a long way from having the definitive answers but was touched by the following quotes, which I recently found online from the beloved Ann Davies,
"Reexamine yesterday and recognize that everything that happened was a blessing beyond description. This is true whether you lost the love of your life, whether an illness left you disabled, your business failed, etc. It was a glorious experience because it was part of the process of becoming. Life is not static. It is coming through rough periods that brings you to glory and fulfillment. Without yesterday's sorrow you'd be incapable of tomorrow's joys. However, with some of us tomorrow's joys might take several incarnations to experience unless we get busy right now and make them our real tomorrows, which it is in our power to do. Remember that.
We must re-examine our reactions to yesterday, to the past, and affirm that the past has deepened the cup of our capacity to love. It gave us insight. It taught us how to walk instead of fall. It taught us how to see things we would not otherwise have seen. Therefore it was well worth it……”
Wednesday, July 12, 2006
Progress Has Slowed Down
Have been a bit discouraged with the Chinese Herbal Medicine Protocol lately as it definitely is not working as well as it did the first couple of months. I have been having a couple of days a week were I simply don’t feel well at all, tired, achy, absolutely no energy. In all fairness though I have to admit until real recently I haven’t been taking the herbs real religiously due to becoming discouraged with my health again and the cost of the herbs being quite expensive and I felt I couldn’t really afford them at times. Plan on getting back on a very regular regimen of the herbs which I have done for the last week and will have my labs rechecked at the beginning of September and go from there.
Monday, May 22, 2006
Labs Rechecked
ALT of 181 compared to 297 in Feb. and AST of 110 compared to 105 in Feb.
Results were faxed to Dr Zhang and I’m awaiting his advice.
I did not have the Viral Count repeated at this time since my medical insurance will not pay for a repeat check of the Viral Load this soon and the $500 cost of this lab test would not change the way I feel or the prognosis in any way. Have felt a bit better than I did in Feb. Still have a day or two each week were I feel tired, run down and achy but not as severe as back in Feb. Plan on continuing current herbal protocol until I hear Dr. Zhang’s current recommendation.
Golf Lesson
I'll shoot my age if I have to live to be 105. ~Bob Hope
My swing is so bad I look like a caveman killing his lunch. ~Lee Trevino
It took me seventeen years to get 3,000 hits. I did it in one afternoon on the golf course. ~Hank Aaron, 1971
I took my first golf lesson this past Saturday. I started hacking at the ball a little bit last summer, played a few rounds at a local 9 hole public course, all par 3’s which makes it a good beginner’s course to practice on. Of course, the golf pro on Sat. changed everything about my game, he’s trying to change my grip, my setup, and my swing, I’m sure he’d even change the way I tie my shoes if I would let him…lol..God knows I can’t argue with him since I have become increasingly frustrated as I’ve tried to teach myself to play. Without a doubt it has to be the most difficult of all things which look easy! I’m sure anyone who has tried golf for the first time would agree with me. I was definitely encouraged by this weekend’s lesson though as I went out and hit the ball better than I ever have on Sunday, though admittedly that’s still not saying too much. Played 18 holes on Sunday and scored a 100. That’s not as good as it sounds though, since we played on the aforementioned course which consists entirely of all par 3’s. I shot a 45 the first time throught the nine hole course and a 55 the second time through. Perhaps it's true what my step son always says, "9 holes of golf is fun but 18 holes is work". At any rate, my dad and I signed up for a series of 4 lessons so the plan is to take a lesson every Saturday for a month…..I can definitely see how one could become addicted to golf.
Wednesday, May 17, 2006
Saturday, April 29, 2006
Wednesday, April 26, 2006
Ukulele Festival This Weekend!!!
Seriously, check out this video clip of a version of George Harrison’s, “While My Guitar Gently Weeps”, it’s actually quite impressive…Two Thumbs Up…..